“Parents — and patients themselves — can be invaluable assets in making great breakthroughs in patient care, especially with rare diseases,” said Dr. Ellen Rome, head of adolescent medicine at Cleveland Clinic Children’s. “Families represent a motivated group striving to find what is best for their loved one, and may have the time and energy to sift through information to find that one pearl that helps a child or adolescent turn the corner.”
Posted on: Thu, 30 Oct 2014 12:00:01 +0000
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