** UPDATE ** Yesterday was a truly magical day! I would not have missed it for the world. Everything was so special and unique, the tipi in the middle of nowhere was amazing. And of course seeing my baby brother marry his childhood sweetheart was incredible. I managed to get through the ceremony with just a few spasms and twinges. The plan was that I would then have a rest but that would have meant not being in any of the official photos and I didnt want my brother looking back and thinking I hadnt made it. So we went up to the reception in the tipi, which were amazing! We enjoyed the speeches, food and cake before the live band played into the night. I even managed a bit of dancing in my chair. Ok so my body started asking me politely around 6pm to go to bed, it was begging more by 8pm, 9pm it was pleading in between the spasms and tremors and about 10:15pm I went into a big seizure. Thankfully Terri had her eye on me as always and moved me off the dance floor without causing a fuss. She said my parents and all my brothers came straight over to help and they decided it was time for bed. They bundled me outside and into the car and I left them partying. I was heartbroken that I hadnt managed the whole night but also so grateful that I had been able to spend most of the day with them and my family. Today has been awful. I didnt wake until 1:30pm and have been in bed all day, cuddling with the dogs. I am in agony, having lots of spasms and know tomorrow is going to be worse but it was definitely worth it! xXx
Posted on: Sun, 17 Aug 2014 20:23:56 +0000