1 year ago today, we received a phone call that changed our lives forever-- by far the hardest day of our lives. There are no words to describe the level of devastation you feel when you are told that your child has a terminal diagnosis. July 3rd we had an ultrasound that told us Teagan had spina bifida which had us rattled, for sure. We did an amniocentesis to see if we would be candidates for fetal surgery and we waited for two weeks to receive the results. Our doctors had warned us that Teagan may have some chromosomal disorder (such as Down syndrome) as well based on blood work numbers that could rule out surgery options. Thanks to an incredible spina bifida community, over Facebook, we began to find hope. We will always be thankful for those messages and phone calls!! After about three days of worrying-- we felt prepared to fight for and with Teagan. Our family was preparing, in anyway we knew how, to have a child with a disability-- whether great or small. How I wish we would be continuing the fight. I wish I was exhausted from having an infant. I wish I was bogged down with dr appts and physical therapy sessions. I wish that I could cut the price tags off the pink 6 month clothes hanging in her closet that I cant bear to pack away. I am reminded regularly of how extraordinary Teagan was. I will always be thankful for that full term of carrying her...As well as the days we had to share her with others. But I still cant help wishing... ~R
Posted on: Fri, 18 Jul 2014 06:16:04 +0000
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