16 MONTHS I like numbers. I feel comfortable with math. I just wrote a post entitled By The Numbers even! Were going to talk about some numbers in a very frank way this evening. I pray I can get through this and actually have the courage to post. This will take me a bit to get through the story. I hope you can make it to the end. Its important. I met with a new doctor last week. Nothing has changed with my health, but I feel I owe it to my family to make sure our Plan B (and C, D, E, F, G...) is solid, ready-to-go and agreed upon should we have to scrap Plan A. My Plan A is taking Votrient daily. It seems to be working well, although we havent seen any improvement since June. (We also havent seen growth or spread, so thats good!) The new doctor spoke frankly with us, and I appreciated his candor. We didnt dance around my health or the fact that I have metastatic kidney cancer. (Thats bad, by the way!) He didnt want to talk about 5-year survival rates. He wanted to talk about the median lifespan. He felt that speaking about average life-span skews the numbers because there are some that will live for quite some time with no recurrence. The median is the middle. 50% of the numbers come before the middle and 50% come after the middle. The median life span for someone with metastatic kidney cancer to the liver is 12 months. (pause, breathe) Yeah, the blood drained from my face when I heard those words. For those of you counting, my metastasis were found in February 2014. I can do that math in my head. And I took about 0.3 seconds to realize what was being said. With the current Plan A we can add 3-4 months. 16 Months. I need a Plan B thats strong. Were working on it. At some point in time my current plan will lose its efficacy. The cancer, if its still there, will grow and spread. If Plan A works and its not there then we can start to talk about a longer future. Even with a successful Plan B I have a 50% chance of recurrence. 50%. Why am I sharing this seemingly bad news? I have never held back. I am open, honest, raw. This is my life. This experience with cancer is what drives me to write, to connect, to inspire. I want you to create action. Do something that matters. Write a note. Reconnect with a long lost college roommate. Mow your neighbors lawn. Call your grandmother. Recognize someone in need and help them. Step out of your normal life for 5 minutes and make a change. Do not wait until your doctor looks you in the eye and delivers critical news. (I am NOT asking for your personal intervention for me. Were covered for now, but there are plenty of people in your community that could use a hand.) About The Napkin Notes Book The point of Napkin Notes wasnt me, or even that I was dying. It was that everyone could be a Napkin Note dad. Everyone could take five minutes every day to do something special for the people they love. —NAPKIN NOTES Available on B&N in hardback and NOOK - goo.gl/hcxGuL Available on Amazon in hardback and Kindle - goo.gl/0b82T9 Available on iBooks - goo.gl/gfSQcy Available at your independent book store Did you like this post? Like it! Got something to say? Comment! Think someone else should see it? Share it! Original Blog Post: napkinnotesdad/blog/2014/11/4/16-months
Posted on: Wed, 05 Nov 2014 00:28:39 +0000
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