3 Years ago on Dec 14, 2011 i did my first fundraiser for Katies - TopicsExpress

3 Years ago on Dec 14, 2011 i did my first fundraiser for Katies Crusade before i knew this family. I had just learned about Batten Disease and i made plenty of mistakes in my information while doing this fundraiser as i didnt know all the facts about the disease.. Today i still dont know all the facts and i certainly dont know what it is really like to have a child with this horrific fatal disease . But after meeting this family and other families that have children with this disease I know and i truly believe that anything i can do to help them and other families like them is a very important part of my life.... and i will continue to help them and to spread the awareness of Batten Disease until there is a cure.... Merry Christmas to Everyone and please remember to spread the awareness of Batten Disease and other Rare Diseases around the world ... https://youtube/watch?v=_KPOs0D1l3A

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