A (rather lengthy) update and explanation. So Im sure many of you noticed me and Scotts rather somber updates yesterday morning. Heres what happened - I got a call on the way home from work that Peyton had hit himself really hard, they thought he had broken his nose, and they were bringing him to the ER. Sound familiar? Yep, Peyton broke his thumb 3 weeks ago. Well this news made me physically ill and I had to hand the phone to Scott to deal with it. He had a lot to say to the director of the facility where our son is at, the summary being, we sent our son with the plan that he would stop injuring himself so he could come home and so far, all thats happened is he has broken a bunch of bones. Thankfully, his nose wasnt broken and his thumb has healed and the cast has been removed. But what is going on? Why cant anyone help our son? Vanderbilt wasnt any better. True, he didnt break any bones but they were calling us almost everyday to inform us they had to restrain him to prevent him from injuring himself. Sometimes they had to hold him for an hour. The reason we brought Peyton to the hospital in the first place is for something horrible called SIBs (self injurious behaviors). Peyton hits himself. Hard. Hard enough to break bones. Hard enough to cause both of his eyes to swell shut. Why? Dont know for sure...they say it can cause an endorphin release. Some of you have asked why cant they put him on meds for this. We have had him on about every known combination of psych meds there is. Theyre still adjusting his meds. I know there are those who think meds are bad and unnecessary, thats fine, you can think that, but please dont tell me that. While Im on the subject, most unsolicited advice is just not all that helpful. We have tried about all there is...GFCF diet....supplements...ABA therapy....medications...we have spent tens of thousands of dollars on his care...when people tell me you should try this drug or this treatment what I hear is youre not doing it right. I know people are trying to help, but it doesnt. I should say that we actually really like the facility he is at. Every time we have been there we have seen nothing but the staff treating the kids there with kindness and respect. And no, thats not a given. We have seen facilities that literally made me cry. We hate the distance (3 1/2 hours) and we hate that Peyton doesnt seem to be getting much better. We want our son home. We want him (relatively) happy and not hurting himself. That doesnt seem like that much to ask. I know a lot of you are praying for Peyton and we are grateful for that. I pray for him, too. But if I were honest, Id admit that Im disappointed in this. We prayed for our son every day when I was pregnant and have prayed and begged and pleaded countless times since. I dont get it. I understand there will be sickness and pain in our fallen world but the amount of pain Ive seen my baby endure, I just dont know. I am so very thankful for the many of you who are so kind and so giving to our family. There are times when that is what keeps us going. I remember the day I came back from one more time of admitting Peyton to the hospital and opened the mail...bill...bill...medical bill...anonymous card with a $300 Walmart gift card. That person will never know how many times that gesture has encouraged me when I was tempted to despair. Anyway, this has been a long, rambling, somewhat incoherent post. And I have said we a lot. I probably shouldnt do that. I cant speak for Scott. He is a huge support for me (and hopefully I for him) but we deal with this in our own way. I love you all....please continue to pray for our family.
Posted on: Wed, 20 Nov 2013 09:12:58 +0000
Trending Topics
Recently Viewed Topics
© 2015