A year ago we were at ACH for the 16th day. Five days before we had been given the news that Coleman had EEE. With a diagnosis that was so rare the news reporters wanted to interview us. I was not interested in being in the news the only thing I could think of is I have to keep praying that God will completely heal him and that we would be at home with him soon. We were talking about how rare it was and decided to do an interview so that others could be made aware of the facts of EEE because until Coleman got sick we had never heard of it before. Needless to say the interview was canceled because the morning of October 22, when the doctors saw how Colemans condition had changed they decided that he had to have a CT scan because something had changed. We waited for the results. It was almost more than I could take, I went in the bathroom so I could be alone it had a shower and a bench. I set on the bench and prayed and cried and begged God to heal him. The the dreaded time came that we meet with his doctors to find out what was going on. The other times we had to meet with the doctors I always let them know that they didnt have the final say and that God did have, this time I just listened to what they had to say. The neurologist surgeon told us that his brain was no longer swollen but it was now bleeding. She said they didnt know why it was bleeding but if we wanted to continue treatment at this point she could try to put another shunt in his head on the other side. She would do surgery or anything that she didnt think would help and before she did the shunt they would have to check his blood to make sure it wasnt to thin. His other doctor with tears in her eyes told us at this point we would never have the same Coleman that we had before. I was just thinking trying to process what they were saying. The doctor took mom to show her the scan and she came back in the little room we were in crying, she said his brain was bleeding everywhere it was bad. And at that point I was mad at God and I said out loud Im mad that God brought us to this point and I trusted Him and now He is going to make me choose to let him go or keep him in a coma for the rest of his life. And at that very moment when the word came out of my mouth a doctor came in and said we need you by his bedside. God made the choice for me so I wouldnt have to. We went to his bedside I read him a letter from Clay we kissed him and told him how much we loved him. I held his hand and told him how proud I was of him for fighting so hard but it was ok if he was tired and he wanted to go be with Jesus. Mom talked to the Doctors and asked if they could keep him with us long enough for his brothers to come says goodbye. They said they would try. We waited all day as one by one family made it in to say goodbye for now. A little after 5pm with family that loved him and his big brother Caleb holding his hand Coleman peacefully flew away to heaven.............. Colemans mom
Posted on: Wed, 22 Oct 2014 15:55:13 +0000
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