An Australian research study seeks to explore family understanding of Alport Syndrome, its psychosocial impact, and individual attitudes to genetic testing, reproductive options and genetic counselling. The goal of the project is to provide recommendations for healthcare practitioners supporting families affected by this inherited condition. Please take 15 minutes to complete the survey . This is a great opportunity to contribute to research that can directly benefit Alport Syndrome families.
Posted on: Fri, 16 May 2014 16:12:47 +0000
Trending Topics
Recently Viewed Topics
© 2015