Ann Raynorposted toPspa Warwickshire 13 hours ago near Derby Ann Raynor .I was my husbands carer,he was diagnosed with PSP in 2009 after 2 years of trying to find out what was wrong with him,he had so many misdiagnosis,in 2008 he fell from a ladder and broke his spine in 2 places he was in plaster from his neck to his waist for 6 months he also had to have his wrist pinned back together as he broke that badly to in the same fall, he did make a recovery from his broken spine but it wasnt long before he started falling again at first his falls were forward which led to many stays in hospital,he took the top of his scalp of trying to get up after a fall he was dragging the top his head along the floor but he could not get up he had to stay there till my grandson found him covered in blood.Then he would wet his self without knowing he had done it,his hand became unreadable,then came the backward falls again once on the floor he could not get up,he then developed a gaze and strange look on his face and he began slurring some people would think he was drunk,he also began to lose control of his bowel movements,then about 2 months after all these symptoms had appeared he was finally diagnosed with PSP just by a simple eye test,once Rod was diagnosed he progressed rapidly,he could no longer walk so in a wheel chair he went,Rod could no longer feed his self and his voice became very weak.A hospital bed was bought into the front room of our home as Rod was no longer able to go up the stairs even on stair lift.We had two carers come in every morning to help me get him bathed, i dressed him every day in different clothes bright coloured t shirts and fashionable jogging bottoms for comfort,he always liked to be dressed nice,he had a reclinning chair in the dinning room where he would stay with me in the day till it was time for him to be put in bed for the night,i never let Rod become bed bound,i didnt want him getting bedsores,i would take him out in his wheel chair as much as i could.Rod had pneumonia 3 times through food and fluids entering his lungs even though his fluids were thickened he said from the start that he did not want a feeding tube when he could no longer swallow. Rod again got pneumonia the doctor came in,he took me into another room and he said we could send Rod in hospital to be treated for the pneumonia but with his lungs being in such a bad way he would most likely get it again within a couple of weeks or we could leave him at home withdraw fluids and food and he would go on a morphine drip and drug that would dry up the pneumonia it would not cure it just dry it up and my darling husband would pass away within a few days,i spoke with my family and i knew it would be what Rod wanted ,he didnt want to live like this locked in his in his own body not able to communicate with any one it was so so cruel so we decided to let him go, Rod passed away 7 days later i never left him,my heart is broken i miss him so so very much,he was a wonderful husband and a wonderful father and grandad,he was always so full of fun he loved life and every body loved him,i HATE PSP X 13 hours ago · Edited · Like Ann Raynor Write a comment... Like · · Promote
Posted on: Sat, 05 Apr 2014 20:51:48 +0000