Anonymous MOM Help! Advice needed! Trouble getting off the - TopicsExpress

Anonymous MOM Help! Advice needed! Trouble getting off the breathing vent. Already had diaphragm plication.... still cannot breathe without the vent. Tried extubation 4 times.... His pH and co2 go out of control and his lung collapsed... His work of breathing goes high. He has heterotaxy.... pulmonary atresia... Situs in versus....ASD..... and malroated stomach..... any advice? Anyone ever unable to wean from vent? Tracheotomy is out of the question as mortality rate is very high for chd babies.... Help!?!? HE is 5 weeks old.

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