Apologies for such a long delay. I dont feel like we accomplish anything from day to day yet I dont feel like we have any time either. Last night Tim actually slept through the night (other than meds) for the first time in over a month. Were both dead tired so that was a big help both physically and mentally. Lauren and Kellie from River Falls Spa very generously helped us to arrange Kellie coming over last Saturday to help with his back. Hes still in pain but between that massage, acupuncture today and just getting out and walking hes beginning to see a little improvement. For someone who was so adverse to acupuncture, Tims taken to it and now adores it. Kathryn at Key has been tremendous about helping get Tim in for treatment and its not only helping his pain but also has lessened his anxiety. Were still working on it and have a ways to go but seeing the improvement is great. Weve been so incredibly blessed that so many people have been so willing to assist us in helping to get Tim these treatments in ways that he is most comfortable so he can get the most benefit from it all. The wonderful people at iTORs CIOS are helping us with a nutritionist and even helping us get him some yoga sessions which we believe will help with his breathing and his anxiety. His eating has greatly improved and were hopeful that he is beginning to gain some weight. Hes walking faster now and although he still requires oxygen and he doesnt see the improvements he is making, he truly is gaining strength little by little each day. The trial drug has been throwing us all for a loop recently and were trying to get that under control again. So close to getting it but still a ways to go. They are likely adding in the Xeloda tomorrow which throws another link in but Im sure we will sort it out as well. Our house is still being remodeled (always so wonderful when these things collide at the same time). We started everything a week or so before Tim got into the hospital the first time so there was no going back and as with an older house there always seems to be something. We keep joking that we shouldve just bulldozed the place and started from scratch. The contractor told us he would be finished by the end of this week so we could have the painter in next week and the floors after that. We will see! The goal is to have our stuff moved in by Oct 7. Were both really excited to be back with Maddy and in our new place. As frustrating as its been, it will be great when its done. Thank you all for you unwavering support, kindness and all you do for us. Im always hesitant to put anything out publicly thanking people for their generosity simply as I dont want it to appear as though we are asking for anything as we are simply grateful and overwhelmed by the amazing messages and people constantly checking in on us. That being said, there have been so many that have been incredibly generous to us over the past few weeks and with everything going on Im afraid Ive forgotten to send a thank you note to some of you in the madness. I apologize but did want you all to know that we really are appreciative and that its just been crazy so my organizational skills are somewhat lacking these days. There is one thing we have asked for and want to continue asking for which are your prayers for Tims continued improvement, for his anxiety to lessen (as well as mine, I talk a lot about his but I also still panic at times as I think back to what happened or what couldve happened). If you all could also pray for a streak of good nights rests for us wed be grateful as well. Thank you all for your support, it means so very much to us.
Posted on: Tue, 16 Sep 2014 21:42:11 +0000
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