As the first ever Duchenne awareness day comes to an end here is a small part of how I feel. William is my sweet baby boy, the day he was born he was handed to me and I was told I have a healthy baby boy. for those first 23 months at no time could we ever have been ready to recieve the news we did. William has Duchenne. A horrific terminal condition that will slowly take my sons body but leave his mind. he will know every step of the way the pain he is going to endure. He will feel the pain and suffering of the people he loves unable to help him. I never thought it was posible to really feel your heart breaking, but with every huge smile, every laugh and every I love you mummy I feel it. Please help me save my baby from this horrific condition. No family should suffer this pain. 2500 families in the uk alone face this every day. With your help we can put Duchenne in history books where it belongs!! Thank you so much. xxx To donate please text will93 £3 to 70070. 100% of your donation will fund vital research for a cure. Xx
Posted on: Sun, 07 Sep 2014 22:43:09 +0000
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