At the end of the day! When we begin each day we have a plan. That script rarely goes as scheduled. When you are parenting a child with special needs you never know how the day will flow. From moment to moment you try to plan ahead and prepare your day, but in reality it will enviably be halted, changed and modified numerous times as you stop and shift gears frequently throughout the day. Your child could not wear anything that is in his closet. He freaked when he gagged on his the new toothpaste. School called forcing you to get out of work early, to pick up your child, who is melting down because they are forcing him to participate in gym. Once you get home, the neighbor stares at you and comments rudely as your child screams for 30 minutes refusing to get out of the car. You have to figure out what you will do for dinner when you realize you are out of what you need to make what you had planned, and are too afraid to drag your child out to the store. Your husband comes home annoyed because dinner is late and not what you promised him earlier in the day. Your other kids are screaming how all your time goes toward their sibling and you don’t care about them. Once you finally get everyone sat down for dinner, your child screams and throws his plate of food, because it didn’t have enough ketchup on it! Everyone else takes their plate, yells and heads off in different directions to eat in isolation. After two hours of trying to get your child to take a bath he is now getting up ten times in two hours before finally falling asleep. You are drained, exhausted and full of frustration. You ach, cry and crawl into bed. You lie there silently wondering how you can do it. You feel alone and unsupported. Yet tomorrow you will get up and do it all over again. You don’t feel like it, but you are a champion! A warrior and a gladiator. It is amazing what you face and what you accomplish. Even though you often only see what you do not do, or what you did not accomplish, you make each day happen; however you patch it together. You often do the unthinkable with the unbelievable. You continue to fight, scratch, and crawl your way through the maze. But you get there and your family makes it through another day! You are the best and are irreplaceable. They know it and love you for it. We are just really not good at showing our love and appreciation. Thank you mom and dads who tackle this endeavor everyday! You do not believe it but you are true champions!
Posted on: Sun, 05 Oct 2014 01:29:29 +0000
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