Attention JSRDF families and friends: The time is very near for - TopicsExpress

Attention JSRDF families and friends: The time is very near for the official launch of JS-LIFE! You are part of an important and exciting transformation of rare disease research and advocacy. The JSRDF is leading the way in this effort of the Community Engaged Network for All. Please take time to watch this info-webinar that explains in detail the JS-LIFE project and stay tuned for the official launch! A full, 30 minute version of this webinar and more details are available at jsrdf/jslife #JSLIFE #JoubertSyndrome

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