Avas had a rough 2days :( yesterday was lots of seizures, which - TopicsExpress

Avas had a rough 2days :( yesterday was lots of seizures, which caused her to go on oxygen for the night. Today shes had lots of seizures also, and super sleepy :( Im so use to seeing her big blues, seeing sleeping is just a reminder of how mean/ unpredictable NKH truely is. Ava can go from good to bad in a matter of minutes. Ive learned along the way to never take one second for granted , good or bad.. We had Christmas pictures today and managed to get a few pics of my sweet girl awake, I tried so hard to wake her but her Lil body was just worn out.. Fingers crossed we get a sneak peak tonight, not hinting around...Lol..

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