Bad spelling. Ucky music. Good information. The young lady at the end looks like me-12 pillows to support head/neck/arns/back. My ankles have been sprained dozens of times, frequently just giving out on me. My joints have taken forever to heal. But now that my diet has changed radically my pain level is tolerable and I feel the joints knitting back together. I know many EDS sufferers who do everything right and struggle EVERY DAY. I consider myself a miracle story because I am getting so much better. I didnt know this was possible. My heart goes out to those with the harsher forms of EDS. My worst enemy wouldnt deserve this and so many with EDS are such kind and gentle and FIERCELY FUNNY people. I guess a sense of humor is a necessary survival tool. GRATEFUL so grateful to Cougar Brenneman, Lilith Nln, Durga Fuller, Ann Marie Prendergast, Walter Campbell, Johnny Bliss, Cheryl Hunter, Bett Martinez, Stephen Blumenthal, and a HOST of folks who helped, supported, empathized, and LISTENED as I suffered fear, pain and profound hopelessness. Those who did not turn away from me while I faced some horrific challenges: you are so dear to me. I am climbing out of that cement coffin and MAN OH MAN does it feel GREAT! Still quite a ways to go, but the bad memories are fading fast and the JOY is taking over. Yay!
Posted on: Wed, 10 Sep 2014 16:50:02 +0000
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