Bonsoir tout le monde, Demain nous avons rendez vous pour Sethi - TopicsExpress

Bonsoir tout le monde, Demain nous avons rendez vous pour Sethi avec le specialiste du syndrome de wiskott aldrich a Necker, suivit de sa transfusion dimmunoglobuline , de son injection de nplate et des bilans sanguin. Sethi fatigue et a le corps couvert de drole de bouton... On attend bcp du rendez vous de demain, savoir quand devra ton arreter le nplate ( on arrive bientot a la fin de sa duree max)... Et que fera ton alors puisque toujours pas de donneur pour une greffe de moelle... Un peu peur ... Mais si il faut on en saura pas plus demain! Lol Sethi fatigue tjrs et pleure en me disant quil est nul car il narrive pas a faire comme les autres... Ca devient dur de protéger mon bebe contre cette réalité de la vie quest la sienne...!!! Mais on lache rien ! :) Bonne soiree a vous tous !!

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