Brayden has not been feeling great unsure of what it is...well his voice is gone, he has been vomiting off and on all day, has as nasty cough, and his breathing is not quit normal. He was so bad he even spent an hour on oxygen and fell asleep at 7. We had to wake him up to give him his 8 oclock meds. he is wanting to go to sleep so bad but his cough keeps him awake... Brayden will be missing his first day of school tomorrow 9 days...super proud he made it 9 days. I guess its a 4 day weekend for him. So excited, scared and overwhelmed to say this butttttt We got the GREEN LIGHT this evening. ... we will be starting IVIG in September. We are trying to get a date figured out so we have a sitter for wyatt and be sure its a good time for us both to take some days off at work. They said we will do IVIG every 2 weeks for 3 times then if all goes well it will be once a month. They will start out as a 3 day trip and with very high hope we will get a routine down soon to where we may only be there 36 to 48 hours... this will take time. We have to wait 2 weeks after he is over this cold so we are looking at mid to end of September. Come on cold go away..my baby needs to start IVIG so we can have in next chance at life. Prayers Brayden can fight this nasty cold quickly.
Posted on: Fri, 29 Aug 2014 03:27:57 +0000
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