Cant believe its been so long since Ive posted. Things were good and we were starting to move past this craziness weve been consumed with for so long. Tyler was passed from Dr. Harless, hes taking leave, to Dr. Jensen who we met with in October and everything was great, markers, CTs no issues at all. I really thought I updated that but it isnt here so I guess not. Anyway moving along tyler has an appointment scheduled to see Jensen again last Wednesday, the 19th maybe? So of course we get a letter that he also has an appointment with Dr.Rendon on the same day, grrrrrr. Hes the urologist who did the last surgery on ty, the lymph node disection from hell as i think of it. We opt to go for Rendon and reschedule jensens appointment as hes in Sydney and its easier to get to see him anytime. Because we are fully expecting to get good news we opt to take Baxter and get one more use of our museum/discovery centre passes while were there. So point is we meet with him and he tells us that there is a tumour that is growing. Its not the cancer but the same out of control cells as sprung up before. Growing teratoma. Must have been to small to see when they were in there before. So hell need to have that same surgery again. We were shocked and crushed. It will be just as invasive but because he knows exactly what hes dealing with and its still small there will be less risk of complications this time. He gave us a 6months to 1 year timeline, and more tests blah blah and hell see us again in 3 months. Baxter easily settled for a trip to the freak lunchbox and got some candy legos and a squishy angry bird. Feeling even worse now that hes been so agreeable to not going to the discovery centre we stop to play at the playground and be a normal family before a long, crappy ass drive home. So we cry and mope and try to pull it together and look at the bright side and are coming around pretty good and then we get an automated call today that he has an appointment with Rendon on Thursday. We also have the appt with Jensen on Wednesday that we missed last week. STRESSED! please do whatever it is you do, wish good vibes, pray, use your wishbone wish if youre having an American thanksgiving, or did that already happen? a star, rabbits foot, whatever that things arent any worse! My hope is that hes figured someother way to get at it, i had asked if thoratic surgery was an option as its high up and he said he was doubtful that they could find another way but hed consult. Always hope for the best right! I realize that this is kind of a lot to take in and my rambling here doesnt explain much but Ive been really trying how to figure out how to say it and really there isnt any great way. Were scared to death and so sick of this junk! Thats whats happening. Again sorry for breaking it like this but whatever, Im sure youll all forgive me! Lots of love
Posted on: Tue, 25 Nov 2014 03:37:45 +0000