Carly Roses CHDs are part of the 85%. As remarkable as it is, her - TopicsExpress

Carly Roses CHDs are part of the 85%. As remarkable as it is, her CHDs were/are not a direct result of her underlying genetic disease. We have no one certain explanation for why she was born with the defects in her heart - only theories of why. As her mother, its very frustrating at times that we just dont know the why for her CHDs. And maybe we never will. This is partly the reason more research, education and awareness of Congenital Heart Disease / Defects is urgently necessary -- knowing the cause helps being able to prevent 1 in 100 babies being born (a) CHD(s). A future where a prevention of CHD, the worlds #1 birth defect, existed would be a dream come true ...

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