Clobug-October 2 Last I posted, Chloes blood levels were low. It took two weeks to get them where we needed them and finally started back on her chemo. They adjusted her chemo pills and we will see if this does the trick. We finally heard from St. Jude, and they are getting the same results as everyone else...nothing to give us definite answers. So we will continue with two chemos to make sure we are getting one or the other of what kind of tumor she may have. All they are still saying is that its high grade, aggressive, and very rare. So now we continue to be thankful that we found it when we did. We thank God daily for the hospital, Doctors, staff, and families he put in our life. We cant thank God enough for letting us still have Chloe in our lives to love and enjoy. Thats the only way we know to cope...with thankfulness. For all of you who have done fund raisers since April, or donated in any way, thank you from the bottom of our hearts. Your thoughtfulness & kindness is more than we ever expected and we hate weve had to miss some of the events. Thank you, thank you, thank you. We love you all!!!! For those of you who continue to pray, thank you so much. We feel them! God has been so good to us. We have never asked for more than prayers and thats all we continue to ask for. We never know what tomorrow will bring but God does. So, we just wake up thankful for another day and do our best to enjoy it and be mindful of all the blessings we have instead of taking them for granted. A lot of you know that Chloe was saving dimes for Disney before we found the tumor. She has wanted to go for a while now. People donated dimes and money for this after she was in the hospital. Well, Drs Drew and Kaylar Howard found out and gave Chloe a trip to Disney fit for a princess. She had a BLAST! We took it slow and enjoyed all we could. Drew & Kaylar, your generosity, love, and kindness is such a blessing. Not only to us but to all who know you well. You both helped bring our precious Chloe into this world and youve always taken care of me. Thank you so much for giving Chloe something so very special. (Michael also thanks you Rose for getting my hormones and mood swings in check) LOL I will post pictures soon of the trip. So now she continues to save dimes for her next adventure. This could be interesting or scary. Today we are in Atlanta for another MRI. This one is of her head and spine. (2 1/2 hours long without sedation. Shes such a trooper) We will get results tomorrow and her chemo as well. We just cant say thank you enough to all of you! We love you all and appreciate all you do. Thank you LORD for kind, loving, generous, helpful people!
Posted on: Thu, 02 Oct 2014 20:05:00 +0000
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