D~Sorry my posts have been sporadic, but I just havent had enough new information to share. Amelia has been making gradual progress and getting better every single day. As you can see, her ANC has been slowly climbing and is no longer considered neutropenic! With this new revelation, her body has begun healing all the hurts...her leg is quite bruised and looks rough, but that was expected with the rush of those white blood cells. Her biopsy sites look fabulous and have contributed very little discomfort. No complaints about her chest and esophageal area either. All good things. Her largest complaint right now is back pain...and her big, comfy bed should cure that ailment. For know, she is on a nice hot pack! The withdrawal symptoms are almost gone. About once, sometimes twice daily, she will feel shaky or tense like before. A little Ativan has been taking care of this. She is temporarily on OxyContin and we are doing a traditional tapering method so she removes the narcotics from her body a little at a time instead of cold turkey like before. This should all be done by next week. We will continue one of our antibiotics by IV when we return home. It isnt available in a pill form. We will have to return to Denver sometime in the next 2 weeks for a follow up appt with Dr Kelly, Amelias surgeon. They will hopefully be able to remove the stitches in her leg and there will be overall healing apparent. Our first set of off treatment scans wont be until right before Christmas, maybe longer. We still have no results on the fungal infection and exactly what type of fungus it actually is. We are still treating Amelia with the suspected antibiotic and it seems to be working. It looks like we should be returning home for Thanksgiving, which is a huge blessing. We want nothing more than to be with our family. We were admitted to Rocky Mountain Hospital For Children on October 27...it has been long enough! Ready to return back over the mountain to our home sweet home. We had an amazing visit today with the #JuCanFamCam bunch today!! Otherwise known as the Cobb Family from Texas. I have shared their posts several times here. They are walking #Disney2Disney, bring awareness to pediatric cancer in honor of their beautiful angel, Julia or Ju as she was known by friends and family. I cannot express how happy we were to finally meet them. While chatting with them, I felt like they were longtime friends. It was so natural, yet we have never met. Just a common thread...cancer. Their children are beautiful and poised. The eyelashes on their Jaxie, who just turned 4, will melt your heart! She apparently is Jus mini me...and she has a bit of spunk to her. A girl after my own heart!! Jenna has such a soft spoken way about her, and a beautiful heart. So mature for her young years...and so pretty! And Jonathan...not only am I so envious because he has met Dirk Nowitski of the Dallas Mavericks but he gave me some good tips about Fan Packs. The young man is so handsome, has a very deep love for his family and when he talks of Ju, his eyes just light up. He is an outdoorsy kinda guy and is enjoying his trek. Great kid!! Jennifer and Dad Jonathan are...simply amazing. What they are doing with their children to not only honor their Ju, but bring so much awareness to childhood cancer is beyond words. They are fantastic. Thank you so very much for visiting and sharing some JUicy stories and fun with us!!!! #JuCan #YouCan #GodCan!!! Hope to see you in June!!!! Please check them out here on FB and LIKE their page! Show them some Team Amelia Love and let them know we sent ya!!! I will keep ya posted as the days close in on the holiday...thanks so very much for your prayers!
Posted on: Tue, 25 Nov 2014 05:45:23 +0000
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