Day 100. Jacks is 100 days old today and we have survived 100 days in NICU!!!! Jack had had a calm and quiet night and was still being given Panadol every six to eight hours. The IV line in Jacks foot was removed and Im am praying that will be the last IV line Jack has for a very long time. He was very sleepy and barely stirred when I did his 9am cares. Because he was so sleepy I decided not to breastfeed him and just leave him sleeping. During his afternoon and evening cares he breastfeed really well and had half tube top ups. Tonight he has continued on the Panadol. He has looked uncomfortable at times but has settled quickly. Jack passed the 3kg mark today, weighing in at 3040 grams. Today the doctors gave the go ahead for Jack to be transferred to Nelson either tomorrow or Monday. Nelson Hospital was contacted and have space for us so thankfully we have been booked in for Monday. I can not believe we will finally be going home! Often scheduled Life Flights are postponed or delayed due to other emergencies that may arise around the country but I am so excited that home is in sight. It is now highly unlikely that we wont be home for Christmas. And Im still planning to have Jack home in our house by then. Jacks surgeon came to see how Jack was recovering. He said when he opened up Jacks right side it was showing signs of a potential hernia so it was great that hed decided to sort this side also. He explained that hed had to remove something else that would potentially cause Jack problems but I cant remember and didnt really understand anyway. Overall he seemed really pleased with how the surgery had gone. Jacks wounds will be closely monitored over the next week then be followed up by a paediatrician in 6 weeks. The surgeon said Jack is unlikely to develop further hernias but has explained what I need to check for. I asked about the lump on Jacks bottom and he thinks that this was probably an abscess. It is now a hard lump which could be uncomfortable for Jack later and may need to be removed if it causes discomfort to Jack later on. One of the consultants spoke to me today and commented on the amazing progress Jack has made, especially with his chronic lung disease. She thinks that Jack wont be too far away from Low Flow oxygen, which he will most likely go home (to our house) on. She explained that we will need to closely monitor his breathing as he has a chance of developing pulmonary hypertension. She explained what I would need to watch for and how we would deal with this. Melissa, Mum and I went into town today for a quick look around and another trip to the K&S Christmas shop. As we were rushing around I realised this would be one of my last trips onto the city. I also realised in 100 days I hadnt been into the city and just spent time casually browsing without constantly keeping a close eye on the time. Every trip away from the hospital we rush around between cares and expressing constantly thinking about our baby in NICU. We returned for my last Thursday NICU parent lunch and my last craft session with our wonderful and lovely hospital volunteer, Christine who also came and meet Jack today. Then mum spent so more time with Jack. Unfortunately we havent managed to convince anyone that Olivia and Jack need to go back to Nelson together. Although we still have a couple of days so we wont lose hope yet. Failing that hopefully Olivia wont be far behind Jack.
Posted on: Thu, 04 Dec 2014 12:25:31 +0000
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