Day 112: Celebrating that we got to go home today. It is always a nice feeling and Ellerie really gets excited when we get to leave the ward. We are working on getting as much food in her because she did drop weight again and if we cant get enough in her she will have to be placed on an NG tube. So if anyone has great high calorie, high fat, high protein recipes or snack ideas, please send them to us. Weve got stuff we are doing now but if the mouth sores come again, that is when we struggle. Overall fantastic day with mom, dad, grandma and aunt Tami once we got out. Go #teamEllerie
Posted on: Mon, 27 Oct 2014 06:22:27 +0000
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