Day 149 - 151 The week has been pretty sweet thus far :D We are - TopicsExpress



          

Day 149 - 151 The week has been pretty sweet thus far :D We are hoping to finish it strong with m eating counts on Sunday to start chemo monday bright and early so we need all the prayers and good vibes that are possible ;) so this week we have been busy busy with activities and emi just enjoying life and attention!!! So for those of you who know emi personally well know shes has no idea what stranger danger is... if anything that inocent, trusting kid that takes candy from the creepy guy would most likely be Emi... she loves people and wont last a full day in the room to save our lives... lol regardless of having her very own little.cornwr filled with toys... she would much rather have the door open and stair at people... shes my people watcher... if it was a sport emi would win she would never get tierd or bored. so on Thursday we sort of just chilled except for meeting Santa in the morning at taking pictures with California Plus America Beauty Pageant lol so much fun :D We just relaxed the rest of the day waiting for her to clear the methotrexate... which she did Friday morning lol but Thursday night / Friday very very early in the morning was hell... so I know I cant really complain because Im sure their are many other parents that will most likely say thats every night for me or be lucky its your one and only, bur regardless that not wvery night for me.. I never have had to deal with this... and by this I mean a crying baby all night long having absolutely no idea what is wrong... Ive stayed up before with her when she first got diegnosed, before getting diegnosed she would wake up randomly crying like crazy and I would have no idea what was wrong but would sooth easily, Ive has to wake up at 4 to make sure emi would stay asleep and calm because she had to be NPO (no food) but all things I know how to handle and fix... walk her around, give her my breast, put music on, just breath.... but last night there was nothing absolutlt nothing... I had never been so frustrated with emi in my life... she was rubbing her belly (I should have realized then) and poking her belly bottom and saying o. I was so tierd it was 4am and everytime she poked her belly bottom would cry more and say o. I yelled and said well stop poking your belly bottom then... she then proceeded to puke on me... I swear emis timing, every time I deside to yell or tell her no, is amazing... so then is felt horrible for yelling, she obviously felt amazing, not even a minute later and ms. Emi was sound and sleep didnt even need the breast... she just passed right out... my belly belly had been hurtting as well so Im guessing it was the pasta we had for lunch and sleep nd dinner (gets really expensive to buy food out of the hospital every day so sometimes regardless of what they are serving we make do with hospital food....), today we settles for fenshfries and chiken tenders... the other food was and no go... Well yesturday was so awesome we met a pro baseball player and a gold medalist for boxing :D the Jessie Rees Foundation: Never Ever Give Up brought them to spread some joy with the joy jars at CHOC such an amazing foundation... plus emi had so much fun specially with the baseball player lol emi literally pulled who ever was walking her (we take turns with the nurses) to find him... it was honestly the cutest thing in the world... its honestly an amazing thing they do for all the kids here :D We Andre hoping she walks by christmas thats all its need for cristmas that and a cure would be too shabby... we honestly had so much fun!!! Emi got startled with the gold medalist boxer.. she was staring at him, and rented he just pope his head leally quick and say hey and emi jumped and freaked out scream/cry so we had to sneak him into the picture, every time he got close emi would burst into tears... some times you only get one shot with kids... I thought it was so funny though being as small as emi and seeing a really tall man or woman for that matter Id be pretty scared... but oh well we got funny pictures at least :D So hopfully if all goes well we start chemo monday :D how exciting!! Lets all cross our fingers and pray like theirs no tomorrow.. I hope everyone has all amazing weekend... thank you to everyone who continues to follow emis journey, we apreciate everyone thank you so much!!! #PrayForEmi Donations - - - > https://crowdrise/PrayForEmi/fundraiser/jamescarransa Twitter: @prayforemi
Posted on: Sat, 13 Dec 2014 10:36:54 +0000

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