Day 6 Update: Ethan continues to do great. He is back to 1 pound and 1 ounce. His Tidal Volume (TV) has been reduced to 2.3 which is the right direction. Ive asked about his heart murmur and when they want to see it get better but there isnt really any concern. If they hit a point of having trouble reducing his breathing support, then they may look at the CPA issue more closely. But at this point, they are able to reduce the machine support so let the CPA figure itself out. As many folks posted, it happened with their baby, its not uncommon, and tends to resolve itself. He is completely off the insulin, at the moment. Last night when we left, they stopped it since his sugar was too low. Since then, its gone back up to the normal range and has maintained. As I said yesterday, Dr DVOs assessment seems to imply maturity from his liver and pancreas since he doesnt require the insulin at this time. The biliblanket has been removed... I would not be surprised to see it back (again, not a bad thing) but just further indication that this little mans levels continue to be where they should. He did have an x-ray last night to see how his breathing tube is placed and the lines to him umbilical cord are looking... all seems OK. Theyd like to remove the lines to his umbilical cord within the next week... at which point they put in a PICC line. Its a catheter and similar to your typical IV but just a more long-term solution. He is off his antibiotics and shifting to just one bag of fluid for his nutrients... he was on several to try and make that perfect cocktail to keep him balanced. Sorry to let you guys down... I feel like I should have known more details about each fluid he was getting but I just havent gotten that far.... yet. ;-) I think the main thing here is the visual.... He had 6 machines with 6 different fluids/meds hitting him. Weve basically cut that in half today so just nice to see less machines/bags keeping him going. They are increasing the frequency of milk... was getting 1 CC (mL) every 6 hours and now it will be every 3 hours. Great news considering he is showing good toleration to that! Prudence has a knack for asking each day What can I worry about next? The response from the doctor was just trying to get him off the ventilator and on a CPAP. The smallest CPAP they have is too big... the prongs that go in to his nose would not fit. They can rig something up so as long as he continues to lower his machine support, we can get him on the CPAP soon. As you see, continues to do well and not much new news. I suppose this is proof of my ability to ramble a couple small points. Prudence and I will try and get out today versus sitting in his room pretty much 10 hours straight. Its tough since we feel that separation anxiety but we are trying to make sure and take care of ourselves the best we can. I think last night was the first night we actually slept almost the whole time and for a good 8 hours. Much needed. Thank you all for the continued support. #EthanStrong
Posted on: Sat, 03 Jan 2015 16:11:51 +0000
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