Dear Friends, After much heart wrenching thought and deliberation, we have come to the only logical conclusion...we need to be where ever is best for Addelyn. Right now, that means Colorado Springs, where Charlottes web oil is grown and produced. After trying the medication here during our most recent trip we know that it is working to SUBSTANTIALLY improve her quality of life. It has reduced seizures by approximately 75%, increased her alertness and reduced her time sleeping, and allowed her to not only smile again but also laugh out loud- a sound that is pure joy for us. I know all of you who love and support Addy understand and also want what is best for her. We are looking forward to being a part of the medical refugee community here and gaining support from the many other families who are just like ours. With the other families, we plan to continue to work to raise awareness and change the laws that are preventing access, and make no mistake..killing children, all around our country every day. Thank you for your continued love, light, and whole hearted support. Without you, none of this would be possible and we are eternally greatful.
Posted on: Wed, 14 May 2014 14:21:17 +0000
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