Dear Heart Parents and families, My baby boy had an echo Wednesday. It went well, with all things considered. I am very emotional, though because I was informed he has a moderate leakage going on. The dr let me know this was normal for him, and that is why we will need to do the 3rd surgery when he is around 3. the reason I am so emotional is because it is so hard to hear that it is normal for my sons heart to get worse. I know we go to these appointments for that reason but I just cant get over it today. I have been tearing up because I cant stand the thought of going through it all again. Normally, I am ok and am able to be thankful for each day I have with my hero. I just am having a rough week, I suppose. I try explaining myself to others but most have a difficult time understanding but I know you all will understand and relate. I am not one to feel sorry for myself, but I wont lie. I wish I could just trade hearts with my baby so he wouldnt have to endure so much. I love him so much and he has made me to want to be a better person. I try not to live in fear of losing him but appreciated him. I just have moments. Please pray for me and him. I want to be the best mother I can be for him and I cant help but wonder if I could be doing something more or better. I love you all very much!
Posted on: Fri, 19 Sep 2014 16:47:00 +0000
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