Dear Morgan, Stop spreading information thats potentially lethal for other Cystic Fibrosis patients. Period. Just stop. Youre not a doctor, you barely even have a highschool education and youre not a part of a legitimate CF organization that makes and establishes rules, guidelines or procedures. Youre a social media manager. I see you time and time again promoting how you hang out with Cepacia patients and act as if its not a big deal and it angers me to no end. Ive lost so many friends due to Cepacia and for you to act as if its not a big deal and should be laughed at is infuriating. If you dont care about your life and have no regard for it then thats one thing but STOP TELLING OTHER PEOPLE THAT ITS OK TO DO WHEN ANYONE WITH A RUDIMENTARY LEVEL OF INTELLIGENCE KNOWS IT ISNT. Cepacia is a dangerous bacteria and you know it. It wiped half of my friends out in a 5 year time span. I was there to witness the Cepacia outbreak in the 90s. I saw it. I saw what it did to them. If you cared ANY BIT as much about your Cysters and Fibros as you claim to then youd cut the shit and actually inform people on what they need to be informed of and stop telling them YOUR experiences. YOUVE been lucky..others have not been..many many others. Try taking those into consideration next time you open your mouth to promote risky behavior amongst the CF community. These are other peoples lives youre playing with. Just because you dontnbecome infected doesnt mean somebody else wont. Can you live with the fact that you may be responsible for somebody elses death, when youre supposed to have their best interest at heart?
Posted on: Thu, 22 Jan 2015 23:01:57 +0000
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