Dear Ones, this beautiful little girl is Ivy. We delivered her and her twin in 2013. We are praying for her to be healed and for an end to this devastating disorder. Jennifer, Thank you so much for your support. Im including some demographics and a picture of Ivy. Rettsyndrome.org is a phenomenal organization. Rett syndrome is like the symptoms of Cerebral Palsy, Alzheimers, Anxiety, Autism, and Parkinson all wrapped in one disease. The girls are non verbal, unable to walk or talk, and lose hand function, but are mentally aware. Theyre essentially trapped in their own body. Rett was reversed in lab mice, something never done for any other neurological disease. But rett is unheard of, so funding is low and a cure is possible!! You can choose which info to share. I can never thank you enough for doing this!! God bless you and keep us in your prayers. Ivy goes for a g tube soon. We are also having her twin, Isabel, tested. Pray for a negative result!
Posted on: Wed, 14 Jan 2015 09:46:00 +0000
Trending Topics
Recently Viewed Topics
© 2015