EDS relatives: check this video out. This video is an updated video presentation just given to me that explains SO MUCH MORE than what any geneticist has probably explained to you and my shitty rhuematologist explained to me (i.e. Rheum numero 1: you need to see a geneticist. Numero dose Rhuem: your skin is very soft and doughy and elastic and see through and your really hypermobile. You should look up Ehelers Danlos Syndrome and ask to see a geneticist. There is no cure and no treatment though so it does not matter if you do or you do not YES - -that are the exact words i was told! no shit!) anyhow, this lady explains some more about eds, and WHY those who are said to be classical can actually be type 3 and vice versa, and how many type 1 & 2 are undiagnosed with 3/ classical types. She talks about the overlapping crossing over of genes mixing diagnosing, not to mention every doctor diagnoses differently... except for VEDS which is a gene passed on 50% from ONE parent. showing how 1/2 siblings can end up with different diagnosing. no i suppose ill go play with stretchy skin , pop out my shoulder, hang upside down to get rid of a four year never ending migrain and head pressure and suck on popsicle while i wonder if i have low hanging brain tonsils and my neurologist sucked worse than the rheumatologist did in this shitty city.
Posted on: Tue, 13 Jan 2015 23:35:53 +0000
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