FAMILY THIS IS IMPORTANT: CFS-chronic fatigue syndromes name has - TopicsExpress



          

FAMILY THIS IS IMPORTANT: CFS-chronic fatigue syndromes name has been a bad name for a very debilitating illness and leads others to think differently about this horrible condition. People including our founder of May 12th Awareness fought for many years to change the name to Myalgic Encephalomyelitis (M.E.)...(I can break that down in the future or you can look it up as it so much fits how those with that condition are effected. I got a message from my friend who shared a very important petition...Canada is the ones that set ALL medical standards for all of us...by signing this petition those with ME/CFS will in the long run get better care and an end will be put on countries that institutionalize ME sufferers instead of giving them medical care. This has happened many times family. AN END MUST BE PUT TO THIS. The name change is vital!!!! Thank you! you all Stop the HHS-IOM contract and accept the CCC definition of M.E. Why this is important Millions of people worldwide suffer from Myalgic Encephalomyelitis (M.E.). For decades, sufferers have been left with no real biomedical research and no effective treatments. Now the HHS is attempting to prolong this time by contracting with the Institute of Medicine (IOM) to redefine the illness. This is unnecessary because experts in the illness, researchers and clinicians alike, have reached a consensus that the Canadian Consensus Criteria (CCC) should be used for both research and clinical purposes. They have sent an Open Letter to Secretary Sebelius expressing their support for the CCC.. facebook/l.php?u=http%3A%2F%2Favaaz.org%2Fen%2Fpetition%2FStop_the_HHSIOM_contract_and_accept_the_CCC_definition_of_ME%2F%3Ffbdm&h=kAQHqg1jJ
Posted on: Sun, 19 Jan 2014 23:46:45 +0000

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