February 23-27 2015 is Rare Disease Week on Capitol Hill. Advocates from all over the country will storm the Halls of Congress to bring attention to the needs of the rare disease community. Registration opens January 5th. You can share your myocarditis story in person or in writing with your representatives in Washington. Go to website rare advocates.org and fill out the online form or contact [email protected] to register for the event. Your story will be delivered! February 25th from 9a-5pm is Rare Disease Lobby Day which will be held in the U.S. Senate and House Office Buildings, where if at all possible you will have a chance to speak with your elected representatives or staff about your myocarditis experience. There is also a RAREARTIST reception. Submit your myocarditis art for display. Help us raise awareness among our elected officials and make a case for myocarditis research funding.
Posted on: Fri, 19 Dec 2014 19:00:15 +0000
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