First thing this morning, I called the clinic to get Dylan in. They were able to get us in fairly early to take a look at Dylans swollen feet. Theyve been very painful and swollen to the point that none of his shoes fit and he can barely walk on them. Dr. Irwin confirmed that he does have hand-foot syndrome. The last chemo he had, Cytarabine, can sometimes cause this and all the walking he did at the Relay probably didnt help any. Just when we thought he got through that one pretty easy this time... Ugh! Theres not a lot that they can do except control the pain. Dylan said that the pain is a 6 out of 10 when not on them and 9 out of 10 when he is walking on them. We talked about Dylan wanting to go to school and Dr. Irwin suggested a wheelchair to get around. I was thinking about spending the day at school with him pushing him around, but Dr. Irwin said let him and his friends figure it out! So Im letting them. :) Hes looking forward to being there with his buddies and Im sure there will be more than enough people to help him out. We got the road map for maintenance chemo. He should be starting this around the first part of July barring any delays with the current block. It is 50 weeks long and repeats in cycles of ten weeks. Most of the chemo will be oral meds, but he will have 4 overnight chemo stays the last few weeks of each ten week cycle. Hell also have spinal chemo once in the 10 weeks and be on steroids a few days in every cycle. It is more involved than the first time he went through maintenance during his initial diagnosis, but less than what he has been through the past year. We are looking forward to being home a lot more! Thank you!
Posted on: Thu, 05 Jun 2014 05:02:49 +0000
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