Folks, children are dying. Come on. We can do better than this. As humans, we must do better than this and I’m confident that we will do better than this. You see, Charlotte was diagnosed when she was three months old with a very, very rare and violent form of epilepsy known as Dravet Syndrome. Charlotte will experience a very high number of what we call tonic-clonic or grand mal seizures about one every 20 to 25 minutes, guys and these seizures will last anywhere from 15 to 25 minutes, so in essence, Charlotte’s life is spent in a seizure and catatonic state. Twice Charlotte’s mother, Paige, has had to bring her back to life using CPR. At any given time Charlotte will be on seven daily different pharmaceutical seizure medications, none of which control her seizures. When Charlotte was five years old her seizures had reached their worst and her medical team had told the Figi family things like, “Start making preparations for her death. She’s probably not going to wake up from this.” The Figi’s reluctantly signed a do not resuscitate order for Charlotte around this time and she was sent home with a fitted chair, a feeding tube in her belly as she had lost all of her life skills, and the family to say their goodbyes. See, Charlotte’s an explorer and for good reason that we’re going to get into here a little bit later. She also happens to be one of the most frequent cannabis users that I know. There it is. There’s the word, cannabis. It incites all kinds of things to different people. To some people it’s the Devil’s weed, right? To others it’s just pseudo medical excuse to get high, and yet others find true medicinal benefit with it. But, at the end of the day, what are we talking about here? We’re just talking about a plant. Okay, this is a plant that grows anywhere from three to eight feet tall, typically. About every seven to 10 week’s it’ll produce a flower or a bud, as you know it. But that’s it, just a plant. It even grows on six continents, but it’s a plant that Charlotte Figi uses a lot of to control her grand mal seizures and in no uncertain terms, Charlotte’s life depends on this plant. Epilepsy Foundation of AlabamaHope 4 Children with Epilepsy NCHope 4 Children With Epilepsy Epilepsy Foundation of America Georgia Chapter Epilepsy Foundation Eastern PA Epilepsy AwarenessThe Epilepsy Helping Hands NetworkMothers Against Epilepsy Epilepsy Foundation of Delaware Epilepsy Foundation Texas Epilepsy Foundation of Northeastern New York Epilepsy Foundation of Virginia Hampton Roads Epilepsy Foundation Heart of Wisconsin Epilepsy Foundation North/Central Illinois - Rockford, ILYouth in Epilepsy Epilepsy Foundation of Connecticut Epilepsy Awareness For Southwest FloridaNeurology and Epilepsy Center of Central Florida Epilepsy Foundation Middle & West Tennessee Epilepsy Support Group Epilepsy Society Epilepsy Association of Central Florida Epilepsy Awareness of Alaska Epilepsy N.J. Epilepsy Foundation of Long IslandThe Epilepsy Foundation of Indiana Epilepsy Foundation of America Epilepsy Foundation of East Tennessee Epilepsy Foundation of Mississippi Epilepsy Foundation Southeast TennesseeFlorida Epilepsy Services Epilepsy Foundation of Louisiana Epilepsy Services of Southwest Florida Epilepsy Resource Center Epilepsy Foundation of Georgia Epilepsy Foundation of FloridaSouth Carolina Advocates for Epilepsy Epilepsy Action Epilepsy Support Epilepsy Foundation of North CarolinaGeorgias Purple Peaches Epilepsy Awareness Program Epilepsy Foundation - IowaThe Epilepsy Network (TEN)Project Epilepsy StrengthAlabama Pediatric Cannabis Advocates Pediatric nursing Pediatric Nursing Pediatric Nursing https://youtube/watch?v=ciQ4ErmhO7g
Posted on: Sun, 15 Jun 2014 16:25:58 +0000
Trending Topics
Recently Viewed Topics
© 2015