Following the ILC hosted Difficult to Diagnose Disease Program Scientific Workshop for Ehlers-Danlos Syndrome in October, there has been significant outcomes that have included increased levels of care to patients and in continued professional collaborations. Today, the ILC was invited to attend the Wasser Pain Management Center educational continuing education seminar titled: “Ehlers- Danlos Syndrome: The challenges in diagnosis and management of an increasingly diagnosed but poorly understood genetic disorder”. The event was well attended with great positive feedback from the people that we spoke to afterwards. Thank you to Dr. Gordon and Dr. Faghfoury for inspiring hope for the EDS community of families in this special way!
Posted on: Thu, 16 Jan 2014 22:05:53 +0000