For anyone that hasnt had a chronically ill child maybe this post wont make sense. Maybe Im putting too much out there but Im pretty desperate at this point for relief. For prayers. Every morning I have to flush leahs line and put a medicine in it to prevent clotting. And every Monday I have to get blood draws and change the caps on the end of her lines, plus flush and put the medicine in. This process should take 10 mins max. But, leahs line is very positional. This means she needs to be in just the right position for the blood to flow. And usually, its temperamental. Today was no exception. I barely got enough blood and started to change out the caps. One was easy and the other I cant get off. I tried and tried and tried. And then I cried. 55 mins had passed of this simple procedure. 55 mins of complete stress. And now Im left here feeling defeated and angry. And of course my girls are feeding off these vibes and are emotional as well. I dont want pity. God gave me these tasks for a reason. I just need some relief today. More of an emotional relief than anything. And its not just about the caps. Its about this entire disease and what it entails. What my daughter and what we, as a family, go through. Some days....I just get tired of it all. Today is one of those days.mSo, Im asking for your prayers. Please and thank you.
Posted on: Mon, 15 Dec 2014 17:11:36 +0000
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