Found out today that the RBCH will be definitely closed in within 12mths. This means myself and many others will never be able to visit the ward where our precious ones passed away and it also means that many surrounding organisations that have spent millions from donations to set services up will no longer be close by like they need to be. Parking is already a nightmare at the Mater because of its location. I also found out there will be less beds in an already overloaded ward that needs more and there will be no radiation treatment available on site like there is in the current location. Today was rememberance day for all the children who have passed away at the hospital, this was our second time going and i am sad to say for me personally today i walked away not so happy with how things were done. I really feel they need a bereaved parent or parents to be part of the board as its obvious that the current people doing the job have no idea how much it hurts when your child is forgotten, which is what happened to one family today...not good enough! I really felt for the family and i know they are very upset by it, its not hard to check and cross reference something so important. In september this year we received a card from the same department telling us they were thinking of us in regards to losing our son Charlie. Yes! you read right son oh and its spelt Charli. I know these people mean well but with something so sensitive you are doing more harm then good if you dont get the simple things right. Still on the fence as to what i want to do about it all but i do know letting go of the place where Charli passed away is going to be a hard one for me, looking at it from any angle does not make it any better it just makes it feel even more so like a bad dream because just like her her room will be gone too. I spoke to one of the coordinators about this and explained my thoughts....her reply was with anything someone is always going to lose out. Not a very professional answer to a bereaved parent whilst attending a memorial. Apologies for the whinge with todays post but unfortunately what ive written is how today went....i am okay though its just im dissapointed in something that i once held high hopes for. Steve.
Posted on: Sat, 02 Nov 2013 09:00:44 +0000
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