Friedriechs ataxia is an energy depriving disease. Just walking - TopicsExpress

Friedriechs ataxia is an energy depriving disease. Just walking down a hall can wear a person with FA out. A mom of a 5th grader diagnosed with FA told me that was the first symptom of FA for her daughter. She would go to the school nurse everyday and sleep in her office. The nurse had a hard time waking her to go home at the end of the day. Some kids will go to school a couple days and then sleep for a day. When a person with FA gets a cold and doesnt feel well, it completely wipes them out and takes longer to recover. There is no treatment or cure for FA. Please help us create awareness and wipe out FA. International Ataxia Awareness Day is Sept 25.

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