George Pegg, who has Duchenne muscular dystrophy, is one of the boys eligible for new Duchenne treatment, Translarna. George, aged 11, and his mum, Lillian, recently spoke on ITV News about their ‘devastation’ at NHS England’s announcement it is delaying its decision on whether to fund and approve Translarna. With families like the Peggs, the Muscular Dystrophy Campaign is leading the fight for fast access to this new treatment. You can watch George’s interview here - itv/news/tyne-tees/2014-12-04/northumberland-family-devastated-after-nhs-drug-decision/
Posted on: Sun, 07 Dec 2014 13:30:27 +0000
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