Good Morning! I am still in Pediatric ICU waiting for a bed. I slept four hours last night which is really good from what I have been doing. The staff from nurses to physicians have treated me like gold. They repeatedly have told me they are not going to leave me high and dry, that they are determined to help me.....what a relief. I Am in a holding pattern.....I will be here for a while as best as we can tell. Still waiting to see what they can offer, what else the FDA May want and to see if it isfeasible for them to do..... My family and I, along with the love from all of you can and will keep pressing on.. I personally am praying for the team here... This team worked so endlessly to try to help me..I told,them I would be forever grateful even if all they could do is try....so I am sticking to that....and even further grateful they will continue to help me breathe if they can. Today I will make it a good day by focusing on the blessings.. I am excited as I have had the chance to talk to one of my brothers a lot more than I normally would so and that makes me happy. I will update more when I can. Thank you for being incredible.
Posted on: Sat, 12 Jul 2014 12:15:31 +0000
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