Good evening all!! We had a most exciting, wonderful visit from auntie Kelly Toxo today!!! It was so amazing to see you!! Eleanor definitely loved seeing you too!!!! :) Thanks so much for coming and thanks also for bringing a sweet gift for the girls from Amanda and for the banana bread, delicious!!! We got out on a pass today, so exciting!! They saline locked Epic Es IV so we could head out :) We popped in at RMH and then we walked around downtown and saw some of the busker festival activities. Justin checked out the comic book shop and then we are at Five Guys, unfortunately I forgot to put the memory card back in the camera so I didnt get any photos while we were out. We came back to the hospital and said our goodbyes to Taco with lots of snuggles and giggles :) At 9pm they came to give her the IV meds, but her IV had stopped working so we are currently waiting for the phlebotomist to come start a new IV. She is loving her freedom for the time being though, walking the halls with Papa without that big pole :) One of the residents came in tonight to do the pre-MRI paperwork because they are hoping to have Es MRCP done before the meeting on Tuesday with all of the doctors. The MRCP is strictly diagnostic, but we are hoping they can get the imaging they need so they can proceed with treatment. We FaceTimed with Rubes today and LeighAnn And-Angela and Finley too :) One of the custodial staff came in while we were chatting and she couldnt get over how cute things were!! Eleanor was so happy and giggling and dancing with Ruby!! Our nurse came in too and got a kick out of the girls too.. So much happiness in that conversation!!! Much love to everyone!!! ~*XoX*~ Epic E and Family!!! :)
Posted on: Sun, 24 Aug 2014 01:53:17 +0000