Good morning! We have a busy week ahead of us. We leave for NY this week. Pierce is scheduled to get his second set of scans post surgery at the end of the week. He will have an MIBG and CT scan. The worst part is the NG tube. The contrast they need him to take for the MIBG scan is impossible. They have to dilute it so it ends up being a full bottles worth and Pierce will not take a bottle of any kind. Since he wont drink from a bottle (or any sippy cup) they unfortunately have to do the NG tube to get the fluid in him, which we all hate of course. Please pray for us as we travel to NY and pray for our safety while there. Also that everything goes smoothly with Pierce, as they will have to put him under anesthesia for the scans, and for CLEAR and perfect results! I will keep you all updated as I can. Thank you all for the continued support. Its been almost three months since this all began and we still feel all the love and prayers going up for our little boy! We couldnt have asked for a better support system
Posted on: Mon, 08 Sep 2014 13:07:50 +0000