Good morning everyone! Last night was a better night and we did get a decent amount of sleep. We are on our way to CHOP to consult and schedule surgery to place the port. Im not sure what the plan will be over the next few weeks but buddys GI doctor will call me either today or Monday. From a stomach stand point this are still horrible!! She is still have a ton of output and she is still in a ton of discomfort :(. Well Ill update later on please keep those prayers coming! Its amazing waking up and reading the amazing comments and etc! Thanks for fighting along with my hero! We will figure things out soon we have too! Its just been one of those craziest unknown week! We truly appreciate everything you do for us it may not seem much but it truly is a lot! Thanks so much Ill post a picture soon! I feel like whenever we leave chop or whenever I get off the phone with the doctor there is never the best news but whatever comes our way we can get through it! Ill never lose hope we will continue to fight this fight! Its very frustrating to see your child not feeling well and in pain but we have amazing doctors and one determined mamma as well as a huge army behind us and lets not forget buddys two sidekicks her amazing sisters Alexis and McKenzy! 👊💪💜 FIGHTER STRONG!
Posted on: Fri, 23 Jan 2015 12:54:54 +0000
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