Good morning everyone!! TGIF!! All days are the same to me now but Im pretty sure you are happy its the weekend!! Sorry I didnt update you yesterday but I fell asleep early and then when I woke up later on, I was just too tired to function.. But today is a new day, and new stories.. Yesterday was a very humbling day for this mama.. It started when we watched the young boy being released after a double bone marrow transplant... The doctors and nurses lined the hallway to the exit, while they sang the song let it go from frozen but sang let him go, let him go it was such an emotional experience for everyone and especially for us parents watching and dreaming for the day that our child will exit through those doors... I was with Calvin for most of the day on my own cause daddy and Dalton went back home to pack up a few things, tidy up the house where we were staying and Dalton had a doctors appointment.. So after that Nana brought D back down and the boys got to visit in the parent lounge while I got to shower.. It felt awesome!! Then Dalton and I walked over to the RMH for another humbling experience... Many times a week groups, companies, or organizations come together and cook meals for the families staying there.. Well I just cant believe after all these years of serving we have not served there... MS society came together and served us a beautiful dinner... I was so emotional because a simple meal takes the stress off the families being able to take time to spend with their children.. And not worrying about cooking... Thank you Lord for opening my eyes to yet another part of this journey that I have been so naive too... Thank you for all that have prepared meals in the past and for those that will... Be sure that when this is all said and done, I will be organizing a team to go and prepare meals, so get ready cause I will be asking for your help!! Im sure your lives will change forever just as mine has when you experience this.. Next week the Toronto blue jays are preparing a meal. That should be petty cool!! Now for Calvins updates... He is doing good.. He has completed 14 rounds of chemo and 2 more to go for this kind.. And then tomorrow he will start a new kind.. That is the chemo that is going to make him sick and loose his hair.. His hair is so full now and such beautiful high lights (that we pay big money for) but it will come back.. And may God bring it back even more beautiful.. Please continue for his health during this round, and for us, that we know how to cope seeing our little man sick and not himself. Hes really not himself already.. Hes on a medication that has turned my sweet innocent boy into a bear.. Its very normal and they actually call the kids dex-monsters on this medication... Its a shame what they have to go through.. He will be weaned off this medication after his chemo is finished and trust me I cant wait. He is just so grumpy and has such attitude.. I took a video of him so I will post for you to experience.. His platelets are at 38 today, up again.. I asked if the chemo wasnt working and they said oh no.. All his other levels are dropping... Hes just holding onto those platelets for now.. I guess he doesnt want a transfusion right now.. Hes on day 9 now with no transfusion, go figure! Other than that, Everything is good.. We are coping and managing to try to adapt to a new routine of life.. But as I meet new people and hear different stories we are all in the same boat and thats for our children to get better... I have met myself a new friend and guess wheres she from?? NEWFOUNDLAND!! And to boot, bishop falls!! So close to our home!! They have a sweet little girl whos two years old and fighting her battle with neuroblastoma.. But they were admitted the same day as us and on the exact same schedule of chemo and isolation... We hoping our rooms are together during isolation so that two newfie moms can shoot the breeze all evening while our sweet angels sleep.. HAHHAAHA Anyways, I should sign off for now, the DEX-bear is awake and I have lost this post once already and had to start over. Thanks for your interest in our journey and be sure I will always update as we can... Biggest prayer request today is to keep our donor healthy and willing to donate next week.. My heart is constantly loving this sweet boy that is going to save Calvins life.. Thank you again Lord for leading this young boy to want to donate his bone marrow... If you are the between the ages of 17-35 please consider donating.. Theres a young boy (12 months old) living here in isolation for 4 months and doesnt have a match.. Maybe you could be the one to save his life or someone else waiting for the gift of life!! Contact blood services today!! Much love to you all!!!! Xoxo
Posted on: Fri, 09 Jan 2015 16:53:14 +0000