Good night all. Although with some delay, we want to inform the outcome of events organized last February on the occasion of the International Angelman Day. The reason for the delay was that we were expecting that they appreciate us mobile phones collected in both events. As we reported, in the Pontevedra BTT March was raised 7,445 euros that were entirely donated to the Fundación para la investigación Biomédica del Hospital Universitario Puerta de HIerro, to help finance the trial with minocycline currently underway, as well as subsequent studies. The rest of the proceeds (on the day of solidarity paddle in Cabanillas del Campo and from the sale of phones collected from both events) amounts to 3,875 euros, today that same have donated to the FAST, as a contribution to help fund ongoing research. Thanks to all participants in both events, are those who have made it possible.
Posted on: Wed, 02 Apr 2014 21:09:47 +0000
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