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HI- Just posted this- You may receive a notification that I am walking in the MDA walk at Mohegan Sun to raise money for phosphorylase deficiency disease. It is on April 12 from 10-1 pm. It would be great if you could join or contribute- it could be a fun afternoon. You can join Team McArdle at musclewalkmda.org/2014musclewalk- I am Team Captain. Some of us would like a clinic dedicated to McArdles here in the USA. We would appreciate your support. It would be a great time to meet other people from the NE. It is a nice venue- the casino is right there with shopping and restaurants even a museum- the Massachusetts walk is in a stadium by contrast.

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