Has to spend literally every waking minute (except nap and night - TopicsExpress



          

Has to spend literally every waking minute (except nap and night sleep) in his arm immbolizers because he keeps his hands in his mouth 24/7. Also on his right hand, there was a cluster of blisters sooo bad a THICK layer of skin came off and its bright red raw skin now. He is a champ though - not one complaint. Sophie only has a few blisters visible and some in her moutb but she is not happy about them and actually is having a really tough time emotionally. I am on 24 hours of a fever... can not wait for this to be OVER. Yes, putting bandaids on Sophies shoe blisters that are almost gone make her feel better so thats what we do 50 times a day. Iv even tried bringing them outside for fresh air and she comes inside on her own and lays down. I have been in my house almost 24/7 for a week. Going insane!
Posted on: Sun, 17 Aug 2014 20:58:00 +0000

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