Hello Dandy, Thank you for your generous donation to the ALS Therapy Development Institute in support of our research. As someone who has worked on behalf of people living with ALS for 14 number of years, I have never seen such large movement behind this devastating disease like we have seen this year. Your donations from the Don Oskey Memorial Golf Tournament, your ICE Bucket Challenge and many others has made ALS TDI the grateful beneficiary of more than $3Million in the last month. Because of our unique model, we are well positioned to direct these funds to specific efforts which will accelerate our mission. We will invest $1 million of the currently received funds in our recently launched precision medicine program. These funds will allow us to expand and include more collection sites and to enroll and bank induced pluripotent stem cell lines from hundreds of patients versus the original 25 PALS which were possible in our current budget. This will help accelerate the identification of subgroups of ALS patients, and potential treatments which can be screened in them. We will also invest $1.5 million in the advancement of a promising treatment into clinical trial. Previously, we had been waiting to move forward due to the lack of necessary funds available. We thought it would take 2 more years before we could invest this much into this exciting program. We will present this data to the global scientific and patient communities a couple of times this year, including at our 10th annual Leadership Summit in November. As a nonprofit we believe it is crucial that we tell donors that we aren’t going to sit on this money. We will write more about these strategic investments that have been made possible as well as holding a webinar soon to have an open discussion about these strategic investments. See als.net/ALS-Events/ALS-Webinars/. Dr. Perrin, ALS TDI CEO and CMO wrote this to describe how ALS TDI will invest the $3 million received to date. Is this all the funding needed to end ALS? No. Additional funds will be needed so that we can take additional risks and make bigger and bigger investments. Thank you for being part of the effort to END ALS and please stay involved. Warm Regards Lou als.net
Posted on: Wed, 10 Sep 2014 14:29:18 +0000
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