Hello everyone! I hope you all had a great Christmas and New Years! I have been meaning to do an update for a while but just kept forgetting because having five kids not in school causes you to forget things :D Two weeks from now marks the one year anniversary of the diagnosis and I just cannot believe the absolute grace and compassion we have experienced over the past year. I am unable to express enough the comfort and joy we have found through the kind words and deeds of such an incredible and caring community. Most of all I want to thank everyone for your continued prayers, I am grateful beyond measure for the peace and calm I have felt this entire time, even when I am afraid. Hunter had a rough couple of weeks after being off hormones and treatment. He had a dose of 284 mCi RAI on December 12th after a week of scans and blood tests. This was about 200 mCi more than his last dose and seemed very high to me but the doctor explained that the treatment becomes less effective each time so they want to give as much as they can now. Taking the disease in his lungs, the stimulated tg (tumor marker) of 3000 and the dose symmetry from the week into account he nuclear med team was confident in the dose they decided on. Everything about the U of M Cancer center has been wonderful and I was so pleased with the staff at the Nuclear Med center as well. For those of you who know about tg, 3000 seems very high but I have since come to learn from other moms with kids in similar situations that boys Hunters age can have extremely high levels and still respond very well to treatment. Hunter was able to come out of isolation on the 23rd so he could spend Christmas and New Years with his brothers and sisters and he even went back to school on Monday :D We go back to Ann Arbor on the 2nd and 3rd of February to meat with Hunters oncologist. Hunter will have a complete blood count with differentials, a pulmonary function test and all the other blood tests and scans they normally do. He will continue to take a suppressive dose of hormones and will go back once a month for the next six months to monitor his progress. I will make sure to post an update after his next appointment!
Posted on: Thu, 08 Jan 2015 00:42:11 +0000
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